Mission Statement
Empowering our clients and families with knowledge, through quality comprehensive programs and services.
Empowering our clients and families with knowledge, through quality comprehensive programs and services.
2ND ANNUAL STEPS FOR SICKLE CELL WALK
Saturday * May 25, 2024
Lyons Park ( 180 Lyons Park Avenue, Mobile, AL 36604)
On-site registration and check-in: Begins at 6:30 a.m.
Walk begins: 7:30 a.m.
$25 ENTRY FEE
For additional details about the 2nd Annual Steps for Sickle Cell Walk CLICK HERE
REGISTER NOW CLICK HERE
or
Scan QR CODE below
Lyons Park ( 180 Lyons Park Avenue, Mobile, AL 36604)
On-site registration and check-in: Begins at 6:30 a.m.
Walk begins: 7:30 a.m.
$25 ENTRY FEE
For additional details about the 2nd Annual Steps for Sickle Cell Walk CLICK HERE
REGISTER NOW CLICK HERE
or
Scan QR CODE below
2nd annual steps for sickle cell sponsors
PLATINUM SPONSOR
GOLD SPONSOR
|
SILVER SPONSOR
Franklin Primary Health Center, Inc. BRONZE SPONSOR Wind Creek WALKING IN THE NAME OF SPONSOR Strikers Club, Inc. Walking in the Name of DeAntonio Reed WALKING IN MEMORY OF SPONSOR Kappa Zeta Sigma Alumni Chapter of Sigma Gamma Rho Sorority, Inc Walking in the Memory of Jessica Knight |
exciting news - gene therapies have been approved!
The Sickle Cell Disease Association of America, Inc. (SCDAA) reported, "On Dec. 8, 2023, the Food and Drug Administration (FDA) approved two cell-based gene therapies for sickle cell disease (SCD), Casgevy from CRISPR/Vertex and Lyfgenia from bluebird bio." SCDAA went on to explain, "these are the first treatments of their kind available to individuals with SCD in the United States. The approval of these potentially curative therapies marks a major advance in the treatment of sickle cell disease; however, there are valid concerns about accessibility and the potential for adverse effects. Click the buttons below to learn more about these approvals."
Click the link below to read more about these landmark approvals:
SCDAA Statement on Gene Therapy Approval
Gene Therapy: What You Need To Know
Click the link below to read more about these landmark approvals:
SCDAA Statement on Gene Therapy Approval
Gene Therapy: What You Need To Know
The purchase of a Sickle Cell Awareness specialty license plate supports this association. Funds will come back to our organization, and will be used to support research, clinical care, and community services relevant to sickle cell disease.
The SCDAA – Mobile Chapter offers free screening for sickle cell disease and trait. If you are interested in being tested, please call 251-432-0301 and schedule and appointment.